Thursday, September 16, 2010
My Poor Blog
At any rate, Fall is arriving here at our house, the mornings are cool and everyone has their official back-to-school cough and cold. Dakotah has entered her Senior year at high school, and has hit the ground running. She is heading off to Leadership Camp in a few weeks, and is busy helping organize that. She is on student council, and student council is very active in her school. This morning, she left the house with lots of "spirit" clothes for spirit day, and is part of her school's improv group that is meeting at *yikes* 7 a.m. some mornings. That means her leaving the house at 6:15, and getting up at 5:30. What a big change from her lazy days of summer where I would finally get exasperated at her at 2 p.m. and tell her "enough already!" - get out of bed!!!
Paige is in Grade 7 this year, and has switched schools, as well as school boards. This means a whole lot of new people to meet, a whole new building, new routines, and lots of new things to get used to, for both of us. So far, it has been an incredibly good choice. The school has been so very welcoming to her, geniunely wanting to learn about her, and to meet her needs. Her classroom teacher seems amazing so far, and is so good at inclusion for her. He has a son with autism, who is quite a bit younger than Paige, so perhaps he is seeing his future in her eyes in a way, and wanting to make her classroom experience positive.
It seems everywhere we go, we are always meeting new people who's lives have somehow been touched in a positive way by someone with developmental delays, or physical disabilities. What a blessing this journey has continued to be for our family.
I took the summer off from my job, to spend with my kids. It was glorious, and in the fashion of Seinfeld's "Summer of George", I lavished in it. It was so nice to be near them every day, literally spending every moment of the summer with Paige, and as many as Dakotah's busy social schedule would allow. We swam and soaked in the sun, and cooked on the barbeque, and went on little road trips, and did all of those things that we wouldn't have been able to do if I had worked. We even watched Big Brother, lol.
So. now I am job hunting, and sort of excited to see what the next adventure in life will bring to me. Always the optimist, I continue to feel as if I have a real purpose here on this great big planet, and know that the opportunity to explore that still lays before me in some form.
I guess that is really the essence of life - to look forward to what is to come, happy to know it will be as awesome as we allow it to be, and sure that we can handle to stumble stones along the way.
Friday, January 01, 2010
Happy New Year!
Its a quiet day in my house, the snow is falling steady and lightly outside, Dakotah is still sleeping, Paige is watching her Sesame Street New Year video for the 200th time, and I'm trying to be all reflective and contemplative.
I'm contemplating resolutions, and wondering which ones I should make, which ones I should ignore, and which ones I might actually keep! I'm not feeling ready to gear up for a brand new year just yet, so I think I'm going to wallow in this semi-holiday weekend, and commit only on Monday.
One thing I have thought a lot about for the new year is where my blog is going. Since joining facebook, I have sorely neglected blogging. I have always maintained that I wanted my blog to be a sort of gift to my children - a chronicle of their daily lives, my thoughts as a Mom as I raised them, and a place where they would know the real me - free of the everyday stuff like laundry that never ends, lol.
As Dakotah gets older, I'm more cautious about what I post about her, as she has the right to pick and choose what stories I share, no matter how cute or funny I think they are. :) She is so quickly becoming a young woman, and not only my oldest daughter, but a wonderful friend as well.
I think, especially as Moms, we hold so much history for our children - stories that are never remembered or repeated except by us. Family histories, and just funny moments we hold on to of our kids that only we share.
Its something I've always thought about - how so much of that goes with us, and unless we get it down, it gets forgotten.
A couple of months ago, I stumbled about a great idea, called "Journal In A Jar" which is basically a series of questions that are posed to help you get started on writing down the important stuff. I think this would be such a wonderful gift to give to someone - and then, in return, a wonderful gift to receive when it was all done - the chronicles of someone's life.
So, because my blog means so much to me, and because I've slacked off on the every day musings of our life, I will be relying on some of these questions to keep my posts going. Randomly, I'll post a question and then journal about it, in no particular order other than what catches my eye on that day.
I hope some of my friends and readers will find some inspiration and lead me to their blogs where they answer some of these same questions. And who knows, some of you may find yourselves the subject of my day's post! :)
Sunday, December 27, 2009
Merry Christmas!
Wednesday, October 21, 2009
Monday, October 19, 2009
You're 16 - You're Beautiful - And You're Mine!
Dakotah turned 16 on Saturday. We ushered the night in 60's style, with retro clothes, lots of Beatles music, tie dye stuff, and peace signs, baby. Add in a dinner and dance, and a fun bartender for mocktails, and the night was fantastic.
I hope Dakotah remembers the night for years to come. She wrote on her facebook page that night:
“Life gives us brief moments with another...but sometimes in those brief moments we get memories that last a life time...”
So true...Here are some pictures of her magical night.
Getting ready for the night with her friends Alex and Jess:
Her friend, Nick, showing her the picture he took of the "Imagine" memorial in NYC at Strawberry Fields. Telling her the story of the guy who decorates there every day.
Opening the frame that has tickets to "Never Shout Never" in it:
Wednesday, September 09, 2009
Upside down and 'round and 'round
The girls started school on Tuesday. Dakotah has a pretty full course load, but she seemed ready to return and dig into the routine. She has just two years left of high school, and even she seems a bit shocked by that - its going by as fast for her as it seems to be for me.
Paige was more than thrilled to start back at school too - she loves it, loves being there, loves being with her friends, loves the routine. Unfortunately, there have been some bumps for her start this year - we haven't figured out busing just yet, and I was more than shocked to arrive Tuesday after school to pick her up to discover that her aide had been cut to just a half day.
I was most upset because it was done without speaking to me, or even informing me, and even her teacher and the aide herself were surprised with the news on the very first day of school.
She has an IEP in place, and I'm confident that it will be ironed out, as it seems to be mostly a scheduling blip made during the summer by the former principal, but it isn't solved yet, and I've got my hackles up about it - ready to make some noise if it doesn't change by week's end.
Right now, she is physically dependent for help with basic needs like walking and toileting, and its not even comprehensible that anyone would think she could go a half day every day without assistance in those areas. Couple that with the fact that she is non-verbal, and needs someone to work with her academically during the day, and well, it is not only unacceptable that they do not carry out the IEP as outlined, it is illegal.
I'm trying to be calm and nice about it, but I'm also determined and quite ready to be assertive in any way that will bring the quickest result. The nice way would be to schedule meetings and bring representatives in, etc, but the fast way is probably to make some noise publicly - the whole squeaky wheel theory, you know.
So, we'll see how that goes.
My job has been really stressful lately too - my boss isn't sure of the direction of his company, and every day seems to bring a different "game plan" to the table. Its difficult trying to follow rules and procedures when they change on a daily basis. So, I don't know where that is going either.
And of course, regular "life" stuff happens - the engine on my van went; it was a $2,000 repair. Next week, we are putting in a new oil furnace at a cost of $1,500. Back to school uniforms and expenses have crept up on me - its always something :)
Last Friday night, Dakotah was at a friend's house for an end of summer party, with about 20 or 30 of her friends from high school when one of the boys was called away suddenly. They found out later that his dad had died very suddenly of a heart attack at the age of 52.
All of Dakotah's friends went to the wake tonight - the first one Dakotah has ever been to. It was emotional for them all, and powerful to know that they were all supporting one another and leaning on each other to be there for their friend Cody.
I was proud of her for going, and would have liked to be there when she did, but it was sort of a rite of passage for the kids as they all went in to express their sympathy together.
As I was driving to school to pick Paige up today, I was thinking there isn't a single spot in my life that doesn't feel stressful. Of course, that isn't completely true - everyone is healthy, well-fed, has a nice warm bed to sleep in, etc.
But, I was feeling a little whiney, to say the least.
Then, I arrived at school, went into Paige's classroom, where I was met with the most beautiful little girl-our friend Emma - who ran to me, jumped in my arms, hugged me tight, and said my name over and over again, and then jumped up and down with excitement.
With a greeting like that, who wouldn't leave with a smile on her face, no matter how goofy the world is acting right now?
Wednesday, August 19, 2009
A Paige funny!
She can fast forward or rewind the dvd with exact precision to the spot she wants to watch, and she has spots on her favorite movies that she likes to watch over and over again. Anyone who visits our house leaves us humming a tune or singing a song that they can't get out of their head for probably hours after, lol.
So, the other day, she couldn't find the movie she wanted. She had the case, but no movie. So, she picks up the case, looks for a dvd in the group that has no writing on it. She then took the blank dvd and the case of the movie she wanted to the computer, handed it to Wayne who was sitting there, then opened the door to the dvd writer on the computer, put the dvd in, and waited, hoping that Wayne would find a copy of it and burn it for her.
She is so smart that girl of mine!!!
Saturday, August 08, 2009
Happy Dance!!

*drum roll*
Tonight, coming back from the bathroom, Wayne let go of Paige's hand for a few seconds, and she STOOD ALL BY HERSELF in the middle of the living room. No other support, no walker, no wheelchair, no wall to hold on to, nothing but air, baby!!!
She was scared to death, and wasn't too happy until we started screaming and celebrating, and then she realized it was something to be proud of.
She couldn't figure out how to sit down without help, and didn't lift her foot to take a step, but she stood and it was glorious!!
How lucky I will be to witness first steps again!! Yahoo!!!
OW!
So, as I realized it was still there, I reached to pick it up, and as I did, my foot collided with the big column base at the foot of our stair railing. It hurt like a beeotch but I shook it off - until I laid down in bed, and touching my toe to the sheet sent throbbing, pulsating pain into my foot. Every time I moved, it woke me up.
Geez. Now its all bruised and swollen looking and pushing its two brother toes off to the side.
You don't realize how much you use a tiny little toe, especially one that's not even on the side of your foot. It stretches with every step. Every time someone comes within 10 feet of me, I scream, "watch my toe!!!"
Kirby is like a magnet to it - he's stepped on it about 20 times already.
I'm pretty sure I'll recover from this tragedy, lol, as I did the same thing about 15 years ago when I tripped on Wayne's golf bag. Its already feeling a bit better, but it would be nice if I could suck some sympathy out of it for a while. :)
Good thing I don't have big feet - I can't even keep these small ones out of the way of anything.
I think I need to invent a toe sling.
Or maybe a toe cast.
And then you could all sign it in teeny tiny letters.
Monday, July 27, 2009
Happy Birthday to my dad
Today would have been my dad's 77th birthday. He died nearly 12 years ago, before he even had a chance to grow old. I think of him often, and miss him dearly. Most milestones - his birthday, holidays, the date of his death - pass by with a peaceful calm feeling, knowing he is still here with me, and that one day I shall meet him again.
I'm not sure why, but today its hard - really hard - to miss him. Its nearly 2 a.m. and I'm sitting quietly in the dark, thinking of him, and praying for the strength to get through the day without the deep, engulfing sobs that I feel wrapping their hands around my throat.
I'm lonely for him. He was such a good father.
~~~~~~~~~~~~~~~~~
In The Light
A shadow of joy flickers; it is me.
I told you I wouldn't leave.
My spirit is with you.
My memories, my thoughts
are embedded deep in your heart.
I still love you.
Do not for one moment think
that you have been abandoned.
I am in the Light.
In the corner, in the hall,
the car, the yard
These are the places
I stay with you.
My spirit rises every
time you pray for me,
but my energy comes closer to you.
Love does not diminish,
it grows stronger.
I am the feather
that finds you in the yard,
The dimmed light
that grows brighter in your mind,
I place our memories for you to see.
We lived in our special way,
a way that now has its focus changed.
I still miss you
and long for the
many words of prayer
and good fortune for my soul.
I am in the Light.
As you struggle to adjust without me,
I watch silently.
Sometimes I summon up
all the strength of my new world
to make you notice me.
I show you that I am here, and you feel me.
Called to you by your grief,
I try to impress my love deeper
into your consciousness.
As you should, I call out
to the Heavens for help.
You should know that
My soul is now healthy.
Your love sends me new found energy.
I am adjusting to this new world.
I am with you and I am in the Light.
Please don't feel bad
that you can't see me.
I am with you wherever you go.
I protect you,
just as you protected me
so many times.
Talk to me and somehow
I will find a way to answer you.
Whatever your question,
whatever your fear,
I will hear you
I will see you with my new eyes.
I am learning to help wherever you are,
wherever I am needed.
This can be done
because I am in the Light.
When you feel despair,
reach out to me.
I will come.
My love for you truly does
transcend from Heaven to Earth.
Finish your life with the enthusiasm
and zest that you had when we were
together in the physical sense.
You owe this to me, but more importantly,
you owe it to yourself.
Live life for both of us.
I am with you because I love you
and I am in the Light.
Sunday, July 26, 2009
Dream a little dream of me...
Its funny, but I almost forget the dreams until I have them again, and then I wake up thinking, "there is that darn dream again." Last night's dream was the one about my sister finding out she is pregnant. In the dream, I see her go through all the stages of pregnancy, with her giving birth to a little boy. Then the dream fast forwards, and I see the little boy about two years old.
In the dream, I am near the boy, but I can't touch him. And I never learn his name. That bothers me, both in the dream, and when I wake up. And I ache for this little boy, totally jealous of her getting pregnant by "accident."
There is so much strange in this dream - first, Kathy's boys are 27 and 31, and she is, well, past child-bearing age, lol. I'm very close to her and her boys, and don't understand why I dream that I can't get near this child.
And, in my waking hours, I am not, not, NOT desiring to be pregnant, lol.
This dream, and the few others that I keep having bother me for days after I have them...I feel vulnerable, haunted by them.
Does anyone else remember their dreams so vividly?
Sunday, June 28, 2009
Before the pool was even full...
Wednesday, June 10, 2009
Advice to myself...
I thought this was a great idea - I'm always writing letters to my children, and just the other day, Dakotah and I were discussing this...how sometimes I write her a letter and give it to her, and sometimes I just tuck it away. I told her it made me feel good to know that when I am dead and gone, and she is going through all of my "stuff" that she will find pieces of her life and words of wisdom from her Mom in places she least expected it. In fact, I would like to add the words, "whisper words of wisdom" to the edge of my tattoo - because I think that's one of my most important jobs as a Mom.
So, here is my letter to 15-year old me, on my birthday!
Dear Betsy,
Today, you are 15. Later tonight, your friends will throw you a surprise birthday party in Kathy's basement. It will be one of the first sort of girl-boy parties you have, and you will remember this party for years to come.
You're just beginning to grow up, and although it may seem slow to come to you now, adulthood is just around the corner. I wish I could offer you the wisdom of the years in the way that a 15-year-old could understand. Enjoy your high school years with vigor - laugh often, study hard, and avoid high school drama.
In a couple of years, you will be voted most likely to succeed in your graduating class, along with most sensitive and, ironically, best couple. Just to let you know, that best couple thing isn't really going to work out, as your long time high school boyfriend is actually gay. He's gonna figure that one out in a few years, and you are going to have to take the ribbing of people who tell you that you 'scared him gay.' But, not to worry, there will be a few other suitors along the path over the next few years.
You should really listen to the advice of some of your teachers, especially your English teacher, Mr. Gigi, who tells you over and over again that you are a writer - that its natural and easy and fluid in you. Don't be so worried that its not a real job - give it your all, and maybe it will be. Believe him when he tells you words are powerful, and that you have the power...
Oh, and take advice from your business teacher too - even though you are learning to type on a manual typewriter, and can fling that carriage halfway across the room faster than most, this talent will soon be obsolete. You won't even believe what its eventually replaced with. Still, she has some good advice - sit up straight, put your feet flat on the floor, no chewing gum and DON'T LOOK AT THE KEYS.
And as long as we're listening to advice from teachers, keeping one body space between you and the next person is always a good idea too. ;)
That permed hair of yours - you're going to wonder what the hell you were thinking someday. Same goes for that blue eyeshadow, the turned up collar on your shirt, and the three piercings in each ear. You're probably still going to love the smell of Love's Baby Soft and Jovan Musk though.
And I'm pretty sure that you'll re-discover clogs in the form of Birkinstocks at some point in your life.
Don't believe it when people tell you that you can't change the world. Its nonsense, and uttered only by people who don't realize the power of one person, of paying it forward, and of remembering to be grateful.
Some things you might consider NOT doing in the next few years - getting into bars underage on the arm of your brother-in-law, mooning a policeman at a town hall dance, showing up at a Halloween party dressed as Woodstock from Peanuts, only to realize its more of a drag queen kind of party, popping out of a birthday cake, winning a "party naked" t-shirt, harrassing the Chuck E Cheese mouse...
And if you decide not to take my advice and still do those things, be glad that this thing called "Facebook" has not yet been invented.
Be prepared for lots of surprises in your life. At 15, you cannot even imagine what the next 30 years will bring you - the friends you will make, the friends you will lose, the jobs you will have, the journeys you will take. Relish them all, and realize they are all forming a part of who you are and who you become. Shake off the bad stuff, and fall to your knees and thank God for the good stuff.
I know you love school - spend your life being a student. Absorb the world like a sponge, learning life's lessons in places that you least expect to find them. Remember, everyone has a story, and those stories are what make us human. Share yours and take great interest in others.
When you are voted Most Sensitive, it will be because you are an emotional person...something you will debate over and over again whether that is a good thing or not. Don't mistake being sensitive for not being strong. You are going to surprise yourself and everyone who knows you with your strength in the years to come. You are going to learn to appreciate that you love deeply, cry often, and laugh even more. You will understand and be grateful and you will not want to change that.
You will be blessed. Many, many times over. You will look back on your life often and be so surprised at the journey. But, you will not wish it away; you will celebrate it.
Its gonna be a great life - see ya in 30 years.
Betsy
Thursday, June 04, 2009
I'm Still Alive!
Its that crazy, fun time of the year where its busy and fun, but almost too busy to be any fun, lol.
The girls have just a few weeks of school left. Dakotah will be halfway through high school in just three weeks. She has had a few meetings at school to try and pick her courses for the next two years, with the "what do you want to be when you grow up" thought behind it.
She really isn't sure, and is really a bit stressed about it, so afraid she will make a wrong choice, or that life will somehow throw her a curve ball that she can't anticipate, and that she will wish she had taken another path.
Of course, life is a journey, not just a path, and no matter what she decides now, she will encounter lots of surprises in the years that follow. Heck, I'm 45 and still probably cannot answer that "what do you want to be when you grow up" question.
Maybe, I'm just not sure I'm all that grown up yet. :)
I want to give her great wings to fly, and want her to know that the world is hers for the grabbing, but I do it all with a big lump in my throat, knowing how fast she has grown up before my very eyes.
We look forward to new phases in her life with great anticipation, and a tiny bit of bittersweet "seize the moment" flavour.
She is such a great kid, and so far, fingers crossed, these teen years have been no more trying than a constant quest to keep her room clean...a quest I simply cannot seem to succeed at, no matter how much I nag at her to do it.
Paige is doing wonderfully - she is not walking on her own yet, but she loves being outside, and begs to go for a walk at least 10 times a day. She loves being outside, even if it means in a stroller for right now.
We are installing a pool for the summer, and I'm so happy for that - both girls love the water, and it will be so good for Paige's physical strength. I'm going to want to sneak way from work many afternoons, I'm sure!
Life is strolling along at a very normal pace for all of us now, and I'm not going to complain about that at all!
Wednesday, May 06, 2009
What a lovely night

My friend, Camille's, daughter had her Confirmation on Monday night. I don't know if you can tell, but if you look closely at her left hand, she has her fingers crossed - she is either making a wish, or telling a lie, rofl.
I was so honoured and happy to be her sponsor. It was such a magical night - Emma was so sweet, and so adorable, and so affectionate all night long. Every time she looked at me, my heart melted.
As I said to Camille, it was as if the Bishop were tying our heart strings together as he Confirmed her. I felt so bonded to her, and tied to her soul in an incredible way. Every few minutes, she would just gently pat my hand, or kiss me so softly. We were both just adoring one another.
I know we all go through times early on when we feel like everyone is looking at our children because they have Down syndrome. We worry that people are staring at us or making judgments about us.
That feeling eventually goes away, and I can't even remember the last time I worried, or even thought about anyone noticing Paige had T21.
But Monday night, well....I really felt like all eyes were on us. There were probably 50 children with parents and sponsors at the Cathedral, and I felt like every single parent and sponsor was looking at Emma and me - with envy and jealousy that *I* got the privilege of standing beside her, putting my hand on her shoulder, and praying for her. I felt like every set of eyes in the room was looking at us, wishing they could be us, as we snuggled and hugged through the service.
My heart nearly burst when Emma was standing on the kneeler in front of me, and reached around and took my hand to put it on the pew in front of her, so I was protecting her on both sides, and then, as if it weren't just right, she took both my hands and wrapped them around her waist. I could have fainted from pure joy at that moment.
As I whispered to her over and over again at the end of the ceremony "Thank God for you, Em, thank God for you."
Thursday, April 23, 2009
Baby Michael

The dentist's office shares the same waiting room as the neurology department. While we were waiting for Paige to go in and have her teeth cleaned, we were people watching as we often do. Paige love, love, loves to people watch, and is content to sit and do it for a very long time. She loves being in a mall where she can see many people come and go.
For me, I am a dreamer, I guess, and I believe that everyone has a story to tell. When I people watch with Paige, I try to imagine the story that I would be told if I were brave enough to ask - imagine the beautiful, maybe heart-wrenching stories I could learn from an old lady out buying lottery tickets, or a little girl happily buying her first pair of school shoes.
So, it was with this kind of absent minded dreaminess that Paige and I saw baby Michael. Now, I have no idea if that was his name, but I think he kind of looked like a Michael. He was about 3 or 4 months old, dressed in a navy blue and tan plaid shirt with little khaki pants on and a sprig of white blonde hair on the top of his head.
Baby Michael and his parents were coming out of the neurology department, and both mom and dad were visibly upset. Dad was nearly gasping for air, as tears streamed down his face, and he struggled to hold it together. He was clinging to his son for dear life. Mom was red-faced, and tear stained, with that deer-in-the-headlights look that is never good.
They were escorted across the hall, to the surgery clinic. Once they were left alone for a minute, Mom folded into Dad's arms and they rocked back and forth and just hung on to one another, rubbing baby Michael's back as they did.
Within a minute, they were again whisked away into an office.
I so wanted to shoot them magic words bubbles - and I'm not even sure what those words would be. All in a moment's time, I wanted to tell them that it was o.k., that they were in good hands, that they were strong, that the love they had for their baby would make them nearly limitless in what they could endure for him. Maybe I wanted to say, "I know, I know" or "I understand."
But, of course, I don't know much of anything, other than they had just received devastating news of some sort.
I pray that the desperation that I witnessed was fear - fear before acceptance of something that could perhaps be fixed, something that would allow them to love and cherish their dear boy for years and years to come.
I pray that the days ahead for them are good ones, that the life lessons that are about to be thrust upon whether they asked for them or not, are good ones.
Most of all, we prayed for baby Michael tonight...a sweet little boy who's story or name we will never really know.
But, I'm sure when Paige and I said our prayers, Our Good Lord knew exactly who we meant.
Sunday, April 19, 2009
Why do I do the things I do?
Wednesday, April 15, 2009
More Easter fun...
Here is my latest attempt at home-made Easter eggs - truffle-like and filled with chocolate, vanilla, nuts or coconut inspired by Bakerella - yummy, but a little goes a long way - we still have too many left!
These are still in the rough stages, still drying, so there's lots of drippy's on the edges.
Thanks to Dakotah and my friend Julie for their groovy decorating skills!
Tuesday, April 14, 2009
Easter Evening
Be Inspired, Be Humbled...
If your heart needs to swell so much it feels like it will burst,
If your soul needs a hug so warm and tight you never want to let go,
If you want a feel good moment that will carry you through the day,
Then take just seven minutes to watch this video - you'll be so glad you did!
Susan Boyle
What beauty we might miss...