Hop on over to Chewing The Fat - and read Dave's "10 Bits of Advice" for parents of kids with disabilities.
Dave blogs every day, and always has something interesting or thought provoking to say!
Thursday, March 27, 2008
Monday, March 24, 2008
Beautiful Birthday
If you click on each picture, you will see them in a larger size. Isn't she precious :)
Sunday, March 23, 2008
Happy Easter and Happy Birthday!
What a wonderful day we had today! Today was Easter, and also Paige's 11th birthday. She was happier and more animated than I have seen her in the last 6 months. She smiled and giggled all day long, and was very happy to have a houseful of company for most of the day. She enjoyed opening all of her gifts, and it was so nice to actually sit her at the table for dinner.
We got some really beautiful pictures of her - I'll post them tomorrow.
Happy Birthday, sweet girl - I love you so!!
We got some really beautiful pictures of her - I'll post them tomorrow.
Happy Birthday, sweet girl - I love you so!!
Saturday, March 22, 2008
Happy World Down Syndrome Day!
Today is World Down Syndrome Day. I am so happy to be a part of such an amazing celebration of diversity and friendship.
This year's theme is "Aim High Enough" - a quote by Dr. John Langdon Down - the scientist who discovered that Down syndrome is a triplication of the 21st chromosome.
If you know someone with Trisomy 21, please let them know you are thinking about them today!
Friday, March 21, 2008
Cast Free!
Paige had her cast removed last Thursday after nearly 6 months in it. It was so neat seeing her finally free of it. She has lost a lot of muscle tone and a good bit of weight - her little waist is so tiny - at nearly 11, I would have no trouble fitting a size 4 pants around her.
The first couple of days were rough - she was uncomfortable, and did not want anyone trying to get her to move - she wanted to do it by herself. She was moving very, very slowly and it took her 3 or 4 days before she could push herself to a sitting position.
The surgeon is project 6 to 12 months before fully mobility returns. But we are seeing changes every day. She is getting stronger and tolerating a little bit more every single day. With some support, she can take 3 or 4 tiny steps. It still seems to be very sore, as she is favoring her left side a great deal.
I'm so happy to have this behind us, and pray that it will "stick", as only time will really tell us.
I called my sister on the way home, and told her, "I am so very lucky - most moms only get to see their child's first steps once - I get to see them twice!"
The first couple of days were rough - she was uncomfortable, and did not want anyone trying to get her to move - she wanted to do it by herself. She was moving very, very slowly and it took her 3 or 4 days before she could push herself to a sitting position.
The surgeon is project 6 to 12 months before fully mobility returns. But we are seeing changes every day. She is getting stronger and tolerating a little bit more every single day. With some support, she can take 3 or 4 tiny steps. It still seems to be very sore, as she is favoring her left side a great deal.
I'm so happy to have this behind us, and pray that it will "stick", as only time will really tell us.
I called my sister on the way home, and told her, "I am so very lucky - most moms only get to see their child's first steps once - I get to see them twice!"
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